New Pictures and Updates from Fri and Sat

Sorry this update is late... it has been an adjustment around here getting home! But I was released yesterday evening, so we had the difficult task of leaving our girl at the hosp. Thankfully, I was so excited to be home with Reagan, and she was just as excited to have us home! It made it ok somewhat.

These pics are from yesterday. Before we left, we got to see B a couple of times, and got to hold her AND feed her! She was a champ, especially for never having eaten in her WHOLE LIFE! Then, we snuggled and she slept. Sweet angel.
She took 40cc's the first feeding in the morning, then 50 the next!!! They were pleased since it was her first day.

Reagan was never a bottle feeder, so this was even new to me!!

They had just taken off her oxygen cannula thing, so the tape left its mark again. Poor red cheeks!

As for more updates, they said last night that she had a harder time with her feedings. Evidently the more volume in her ventricles in her brain is affecting how coordinated she is with the whole eating thing. So, they put a feeding tube in her nose just in case, but never had to use it today! Her day nurse today, Margie, is a champ and B must like performing for her! Anyways, when we were there for her 6:00 feeding, she let me try and B had a hard time again. She said it was still the expected thing for our girl who needs a shunt, so I let her finish her feed. Poor Mommy was a bit emotional after B's lips turned blue while I fed her!! So I was happy to let Margie do it. But she took 60cc's in the end, so that was great! The neurology resident also let us know this morning that they might do her shunt today... he wanted the attending to see her. When the attending came by, he said it was still worth it to try and wait until Monday. We're glad I guess, but knowing she needs it makes me want to do it and get it overwith!!! Poor baby needs her mushroom head to go away! But I'm confident they are watching her closely and will do what is best. Margie said to not be surprised if they do it tomorrow, so I will keep you all posted. For now, we are going with Monday and the "wait and see" thing. OH! They are also putting a cath in every 8 hours... with the only purpose so far being that they are measuring how much tinkle she leaves in her bladder after she goes in her diaper. Everyone leaves some in their bladder... spina bifida babies often leave too much when they go. So they continue to weigh her tinkle diapers and are keeping track of her tinkle from the caths... that way the urologist can better assess her history of all this in a few days. Then we'll better know if she needs the caths or not to help out her tinkle habits. So that is her potty update. :) We'll go up again in the morning, get more info, and take Reagan for Sibling Day. Until then, here are cute pictures of her eyes open this afternoon. She doesn't look like newborn Reagan at all to me anymore! She is her own kid I guess! But man, SO FREAKIN' CUTE if I do say so myself!!!

This look is like "Seriously Daddy, enough with the pics!!"

This is the very happy Mommy! And partly (selfishly) because my swollen face is going down a bit! :) Yay for that.
Thanks again for all the prayers for our girl. Things aren't perfect, but nothing unexpected. Keep praying!!!!!!!!!! Specifically for her shunt surgery to do the trick, for her caths to not be necessary in the future, and for her to eat better and better each day. Thanks... we love you!